«J'étais juste tellement différent»: Les expériences de femmes diagnostiquées avec un trouble du spectre de l'autisme à l'âge adulte en relation avec le genre et les relations sociales

Aperçu: G.M.

Un nombre limité d'études qualitatives à petite échelle ont exploré les expériences des adolescentes avec troubles du spectre de l'autisme , mais pas les femmes adultes.Sept entretiens semi-structurés avec des femmes ayant reçu un diagnostic à l'âge adulte ont été réalisés. Le recrutement a porté sur les services communautaires de santé mentale, les services aux patients hospitalisés et un groupe de soutien communautaire. Des expériences et des histoires diverses des femmes ont émergé de deux grandes catégories liées à l'identité de genre et aux relations sociales.

Autism. 2017 Mar 1:1362361316687987. doi: 10.1177/1362361316687987.

'I was just so different': The experiences of women diagnosed with an autism spectrum disorder in adulthood in relation to gender and social relationships

Kanfiszer L^1,2, Davies F¹, Collins S¹.

Author information

1

1 University of Essex, UK.

2

2 Great Ormond Street Hospital for Children NHS Foundation Trust, UK.

Abstract

Existing literature exploring autism spectrum disorders within female populations predominantly utilises quantitative methodology. A limited number of small-scale, qualitative studies have explored the experiences of adolescent girls with autism spectrum disorder, but adult women have remained largely unheard. This study aims to broaden the stories told within autobiographical literature and empower those within the wider community of women with autism spectrum disorder. In doing so, it seeks to extend existing conceptualisations of experience to include socially and culturally located factors. A qualitative methodology was adopted, utilising multi-stage narrative analysis. Seven semi-structured interviews with women who received a diagnosis in adulthood were conducted. Recruitment spanned community mental health services, an inpatient service and a community support group. From the women's diverse experiences and stories emerged two broad categories related to gender identity and social relationships. The findings are discussed in relation to existing constructs of autism in women.

PMID: 28326792

DOI: 10.1177/1362361316687987